KENDRA NEEDS HUGS AND A NEW DOC!!!
UPDATE-------------------------------------

I JUST RECEIVED THIS NOTE FROM KENDRA:

Thanks Stan, for your help as always!  I will look into finding a large neuro center....I live kind of in the sticks so have to travel a little to see a doc.  I may just have to drive a little further to find one I like.  Maybe make the trip to Tampa.  I know you're right about not giving up on neuros...my experience with them has just always been negative.  But there must be one out there I can gel with.  The search is just frustrating.
I'm not currently on a MS med.  I did Rebif for about 4 months and it was too horrible for me.  I'm so glad it works for some people, I just can't live my life feeling sick all the time.  I've been considering Copaxone but haven't had the insurance for so long.  I asked this doctor about it and he was very nonchalant...you know, "well, if you want to try it let me know".  Made me dislike him even more.  At least the other neuros I've seen have been passionate about treatment!  At any rate, it's nice to "be around" people that can relate to what I'm going through.  Thanks again for all you do!  You're a great friend  =)
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I SUGGESTED A NEW MS SPECIALIST TO KENDRA...DO YOU HAVE A SUGGESTION? DO U GO TO ONE IN FLORIDA...THAT U LOVE? - stan

Hi Stan,
I just checked my other email address and got your Christmas card and wanted to thank you. It's cheered me up a little bit...

I have had a not so great day. I had my first appointment with a neurologist in over a year and a half, since we moved around a year ago and have been waiting for my husband's work benefits to kick in. It was a very disappointing visit. I felt like he was very dismissive with me; you know, I do very well on the basic neurological tests...close your eyes, point to your nose, hold your arms out, etc...my reflexes are good; I guess my eyes check out ok, although, I'm always a little surprised by that since I've had increasing blurriness and whatever it's called when they moved side to side real fast for no reason. I asked him my status and explained my symptoms and he let me know that I do not fall under RRMS because I've never really gone into remission. My symptoms are pretty constant. Well, what does that leave? He wouldn't say out loud that I was SPMS which is very frustrating...I really just want doctors to be straight with me. I requested another MRI since I haven't had one in over 2 years and he just blew me off and said the insurance company probably wouldn't pay for it since I haven't had any major attack. And oh, there's no reason to come back in for another six months since I don't have any "deficit" is the word he used.

Now I know I'm very fortunate so far in that I'm mobile and self sufficient, but since when is constant fatigue, bad balance, always present altered feeling in one leg, dizziness, blurred vision, etc, etc, etc. equivalent to "no deficit".

I'm so angry I screamed in the car all the way home. And been crying all day.

I'm only hoping my visit to the gynocologist will go better tomorrow. I'm so sick of everyone in my life blowing me off because they can't see my so-called "invisible" symptoms. Including doctors. I'm so swearing off neurologists. Screw them. Stan, I miss my doctor in Tennessee so much! I'm scared I won't be able to replace her. I'm so sorry to bother you with this, but I think I really needed to get it out.

I was going to write a blog, but I'm kind of feeling lately like people in my life don't really want to hear about all this. Not that they don't care, just they don't know what to say or anything.

 I hope you've been doing ok with the empty nest thing and that your son is well.

TTYS,
Kendra

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